On November 4th, 2009 we had an ultrasound for Baby Rule and found out she is a girl! We also became aware that she has a rare heart condition called Hypoplastic Left Heart Syndrome. This was confirmed after a second ultrasound with the Prenatal Cardiologist at Sparrow the following day. This condition simply put means that the left side of her heart did not develop fully enough to support blood flow. She will need three surgeries after birth, in addition to multiple heart catheterizations. The pregnancy will continue as normal, however, the trouble for baby begins at birth once she is living on her own. After her first few days of life she will undergo her first surgery, the Norwood Surgery. This seems to be the largest hurdle she will have! She will endure two more surgeries, one more at 6 months, and another at a year and a half. Baby Rule will be born at U of M hospital and will receive all her care there.
We are hopeful God has a plan for her and will hold her in the palm of his hand!
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Happy Birthday!
Riley Faith Rule
Happy Birthday!
Prayer Requests
Please pray Proverbs 3:5-6 "Trust in the Lord with all your heart and lean not on your own understanding; In all your ways acknowledge him, and he will make your paths straight."
Please pray for Riley and post when you do! It is so encouraging to witness answered prayer and we want to have those prayers to strengthen our faith through these hard times!
Tomorrow we go to U of M for cardiac counseling, ultrasound, etc... We are looking forward to learning as much as we can! Thank God U of M is soooo close!
ReplyDeleteToday we had extensive appointments at U of M Hospital. We started in Genetic Counseling and Ultrasound, which ruled out any chromosome abnormalities. She was diagnosed with Hypoplastic Left Heart Syndrome and no other complications. We also had a fetal ecocardiogram which was a full exam of baby's heart. The good news is that the doctors found some blood flow to the left side of the heart, which creates less stress on the right side of the heart. Baby Rule will still need surgery shortly after birth and will be in the hospital for a minimum of 3 to 4 weeks.
ReplyDeleteWe were very pleased with everyone at U of M and felt very comfortable in their care. Baby will be born at U of M most likely on her due date, March 22nd.