As we sit by Riley's bedside we are realizing how much we are thankful for today! Riley has stopped taking the vasil-pressor and epinephrine medications, two down, 8 more to go! She has weened down on the ventilator and the nitric oxide that flows through the vent. The short term goal is to get her completely off the ventilator and once this happens she can move to a step down unit!! Riley is responding very well to her feeding tube. She is digesting about 96mls of mommy's milk each day, which will help her each day grow stronger. Riley will probably need a few more weeks in the hospital to adjust to her meds and grow!!!
We are thankful that Riley's birth was so amazing! We are thankful we were able to hold her before surgery for an hour each. We are thankful that her left ventricle grew enough to allow her to use both ventricles. We are thankful her surgery was such a success and very thankful that is is over! We are thankful for each and every doctor, nurse, technician, and staff member at U of M hospital, they are truly dedicated people. We are thankful Riley is responding so well to her medications. We are thankful for how strong Riley has been. We are thankful for our family, who has taken care of us and our other children. We are thankful for our wonderful friends, who have all given us much needed support. We are thankful God has given four other children who are healthy and strong, so easy to take for granted! We are thankful to have experienced God's presence and peace as he continues to show himself through Riley's recovery! (Ok that may have sounded like Thanksgiving at Grandma and Grandpa Reid's house!)
Some things we could do without include sleeping away from home, trying to find a parking place, hospital food, missing our other kids, and trying to find a lounge where we can actually sit down. We have been taking turns where one of us stays at the hospital, while the other parent goes home to be with the kids. We are not sure which is harder, but it seems we are leaning toward home being harder (-:
Thank you all for your comments on the blog! It is so incredible how many of you are praying for Riley and our family!
In HIS grip!
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Jenny
ReplyDeleteI am so THANKFUL to have you as a friend. I am so thankful for getting the opportunity to touch and visit baby Riley and I am so thankful that God has blessed you and your family.... iu Love You...Kimmy
Great post! - Especially because I remember your stories of having to get up and say what you are thankful for at Thanksgiving dinner. Anxiously following your posts and hope the good news continues. Heal, heal, heal, baby Riley :)
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