Riley had a very stable day, doing well on her meds and ventilator. The cardiologists did order another echo-cardiogram today to determine some new findings. Now that echo-cardiograms can be performed directly on Riley, and not in-utero, they are seeing things a bit more clearly. There is some belief that the left ventricle has actually grown and is functioning well. The doctors are considering that Riley may be able to use her left ventricle and so they are focusing on the productivity of the mitro-valve. If the valve proves to be large enough to handle blood flow between the right and left ventricle, assuming the left side can sustain the blood flow from the right side, placing a shunt may not be necessary. This would make the Norwood Procedure unnecessary. The cardiologists are meeting tonight to determine what the diagnosis should be and plan what surgery she should have. Riley does still have a hole between her right and left ventricle that needs repair, along with a procedure that would restructure her aortal arch. If she does not need the shunt the surgery could potentially be less serious and could allow Riley to be a two ventricle baby!
We are guardedly optimistic that Riley's diagnosis could change to something very different. We will not find out until tomorrow when we meet with the doctors. Our hope is that Riley could function with both ventricles and could only need only this surgery to repair her heart.
These changes could be answer to prayer! We are hopeful either way that God has his hand in every part of Riley's heart surgery, regardless of the diagnosis.
In HIS grip!
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Jenny and Eric
ReplyDeleteThanks you sooooo much for keeping us up to date on baby Riley. You guys are all I can think about these days. I'll say an extra prayer for Riley tonight in hopes that she does not need the Norwood surgery. GOD BLESS
Love Kimmy
There is a LARGE faction of people on the east coast praying for Riley Faith. Jenny, your Jersey Girls have you - Nayma, Shelly, Twinks, and Jeanie are working the prayer program in a big way, and we've got Deanna deep in the heart of Texas doing the same. You should know that Chris and I prayed together, and aloud, for the first time ever on Friday. Suh-weet!
ReplyDeleteHis will be done. Amen.
Love, Linda Lu
Love, Linda Lu
Jenny & Eric and family..
ReplyDeleteshe is soooo cute dude! those lips go on forever! lol Our Lord is Mighty and moves mountains ... i have been covering you since Nectar told me you were pregnant! Hold on to the Hem of His garment. You all look wonderful, Riely is so blessed. She is a testimony to your lives and in increase in your faith. He is Jehovah Nissi and Jehovah Rapha over you all.
Shalom ... Nayma
(one of the jersey girls)
"..and on His right thigh is written His name..Faithful and True"
ReplyDeleteOver here on the east coast today was a MAGNIFICENT sunny, bright and beautiful day - a much needed respite after all the tumultuous raining it has done over the last couple of days and a promise that spring is right around the corner - and so it looks like it's only fitting that today wonderful news has come to the Rule Family as well - it's a season of hope and faith that the best is yet to come regardless of the struggles we have gone through thus far ...much love to all of you - we're sending our good vibes your way! Love, Shelly & Justin
ReplyDeleteHi Jenny and Eric. I'm way behind on the news of Riley, and now just reading the blog. Just wanted to let you know we are thinking about you guys and praying for you all. Having a baby in the NICU for over 5 months, I have a good idea of some of the stresses you are all going through. Sounds like Riley is a fighter and a strong little girl! Know that we are out there praying for you all.
ReplyDeleteJason, Niki, & Natalie Pyciak